SCOTCAP
Experience of those who will deliver and use the future video capsule endoscopy service within NHS Scotland
August - September 2017
SCOTCAP is a potential new NHS Scotland service for delivering video capsule endoscopy which would replace or complement existing colonoscopy services. A trial is currently being run in the Highlands and Islands of Scotland between NHS Highlands and Corporate Health. This report is the result of a single design workshop to look at the experience of those staff delivering the trial and future service and those patients that have taken part in the ongoing SCOTCAP trial. The material presented and discussed at the workshop resulted from a review of existing documentation on a potential video endoscopy service in Scotland. The workshop was attended by two GP's from rural practices who have trialled capsule endoscopy, two nursing staff (one from NHS Scotland and one from Corporate Health), two patients who have taken part in the trial and a further representative from Corporate Health. The workshop was run by researchers from the Innovation School at the Glasgow School of Art and is part of the work of the Digital Health and Care Institute.
Findings
Below is a visualisation of the future video capsule endoscopy service along with notes where it is significantly different from the existing colonoscopy service at Raigmore Hospital, Inverness. Below that are some buttons which will display the (digitised) feedback gathered from participants at the workshop along with some commentary for each topic. A downloadable PDF showing all the feedback is available here.
You have to be almost dead before you can get NHS patient transport.
The issue of travelling to attend a colonoscopy from rural and possibly remote locations is a primary concern for patients and can affect the uptake of colonoscopy services. The issue is exacerbated by the need to take powerful laxatives possibly prior to travel and furthermore by the potential lack of public toilets on the route travelled. Also, the potential need for sedation during optical colonoscopy will restrict driving soon after the procedure.
The cost of travel (and accommodation if necessary) is borne by the travelling patient and so may be hidden from the costs of the service provider.
From my [patient] perspective, this offered the possibility of a logistically substantially simpler and cheaper alternative to a standard colonoscopy.
The video capsule endoscopy is diagnostic only which is the obvious difference from an optical colonoscopy in terms of capability within the procedure. There is potential for many people to have a video capsule endoscopy. Some patients would then need to have an additional optical colonoscopy for polyps to be removed. In this case the video capsule colonoscopy has cost the patient and NHS Scotland extra effort and money.
Correct screening and vetting by GPs and Gastroenterologists is critical to avoid the unnecessary choice of a video capsule colonoscopy. Additionally, it needs to be made clear what the clinical governance is in the vetting process. Appropriate information for the patient (patient information leaflet) is required to communicate the reasoning for the optical or video capsule decision, to improve patient understanding if an additional therapeutic intervention should be required after the video capsule process.
On the positive side, the SCOTCAP service could lead to:
- vastly better patient experience where only a diagnostic colonoscopy is needed. For example, with recurring inspections;
- more people having a diagnostic colonoscopy that would not have normally taken the option to have a colonoscopy procedure.
As local as possible, as specialised as necessary.
Talking to a nurse in Denmark about the capsule went very smoothly for me.
The number of staff required for an optical colonoscopy benefits from economies of scale as the procedures are concentrated at Raigmore Hospital, Inverness. The SCOTCAP service would require small amounts of time from distributed nursing staff. This raises an issue for training and equipment provision as relatively few video capsule endoscopies could be done in some rural areas due to low population numbers. During the workshop participants were unsure of what effect rurality has in this instance and how best to hire and train staff to deliver the SCOTCAP service.
Corporate Health nursing staff could deliver the SCOTCAP service in remote areas where NHS Scotland do not have sufficient staff or sufficiently trained staff. Patient participants at the workshop thought this would not affect their trust in the service. Participants wished that the service could be delivered entirely by NHS Scotland (in terms of nurses, not the analysis and reporting) but thought that there could be an intermediary period where Corporate Health could deliver the service until the demands of the service were better understood. At which point the service could be brought into NHS Scotland with a clear understanding of the staff requirements.
I was left alone, ‘in-charge’ for some time during the VCE. From the patient perspective, this is a major difference, as I discovered the trial began to deviate from what was either anticipated or in the instructions.
Great to go into your health centre, with friends you know. But at home is best.
It is envisaged that the SCOTCAP service could be delivered at a local medical centre or at the patient's home. The two participants at the workshop who had trialled the video capsule endoscopy as part of the current trial said that, while their own home would be preferable, their local medical centre was a familiar environment and would be preferable as well.
Feedback fell into two opposing categories:
- the feelings of safety and control that come from being in your own home and obversely;
- the doubt and anxiety brought about by poor instructions and belt ergonomics.
The trial should include not just the procedure, but also the review of documentation.
- The information leaflets and video capsule equipment instructions need to be written/improved and this should be tested as part of the trial;
- All material given to the patient needs to be ratified by NHS Scotland and;
- Booking arrangements for the SCOTCAP service need to be brought into formal NHS Scotland facilities (i.e. SCI Gateway).
Authors
Jeroen Blom (j.blom@gsa.ac.uk), Research Fellow
Dr Jay Bradley (j.bradley@gsa.ac.uk), Research Fellow
The Innovation School, Glasgow School of Art
September 2017.
Copyright
This publication is copyright. Apart from any use as permitted under the Collaboration Agreement no part may be reproduced in any form without written permission.
Disclaimer
This document has been prepared in good faith on the basis of information available at the date of publication without any independent verification. The Digital Health & Care Institute (DHI) does not guarantee or warrant the accuracy, reliability, completeness or currency of the information in this publication nor its usefulness in achieving any purpose. Readers are responsible for assessing the relevance and accuracy of the content of this publication. The DHI will not be liable for any loss, damage, cost or expense incurred or arising by reason of any person using or relying on information in this publication.